Sunday, April 24, 2011
Sunday, April 17, 2011
To Remember Me - I Will Live Forever
by Robert Noel Test, American Poet (1926-1994)
The day will come when my body will lie upon a white sheet neatly tucked under four corners of a mattress located in a hospital; busily occupied with the living and the dying. At a certain moment a doctor will determine that my brain has ceased to function and that, for all intents and purposes, my life has stopped.
When that happens, do not attempt to instill artificial life into my body by the use of a machine. And don’t call this my deathbed. Let it be called the bed of life, and let my body be taken from it to help others lead fuller lives.
- Give my sight to the man who has never seen a sunrise, a baby’s face or love in the eyes of a woman.
- Give my heart to a person whose own heart has caused nothing but endless days of pain.
- Give my blood to the teenager who was pulled from the wreckage of his car, so that he might live to see his grandchildren play.
- Give my kidneys to the one who depends on a machine to exist from week to week.
- Take my bones, every muscle, every fiber and nerve in my body and find a way to make a crippled child walk. Explore every corner of my brain.
- Take my cells, if necessary, and let them grow so that, someday a speechless boy will shout at the crack of a bat and a deaf girl will hear the sound of rain against her window.
- Burn what is left of me and scatter the ashes to the winds to help the flowers grow.
- If you must bury something, let it be my faults, my weakness and all prejudice against my fellow man.
- Give my sins to the devil.
- Give my soul to God.
If, by chance, you wish to remember me, do it with a kind deed or word to someone who needs you. If you do all I have asked, I will live forever.
Saturday, April 16, 2011
My introduction to CF came in the form of a fiery red head named Eva Markvoort. Actually, at the time I think she was brunette, but that could just be my color blindness. In any case, I stumbled across her blog in 2008, read & followed her entries, and from time to time, she would post videos. Never had I witnessed such courage, such finesse and such dignity in the face of something as ugly as CF. Reading about someones illness was bad enough, but the helplessness I felt one night that came from watching the videos was horrible. She posted a video of herself during a coughing fit. I wept, it was frightening to watch and has, to this day, stuck in my mind.
A few years ago, I caught a cold, or at least what I thought was a cold. The suffering lasted a few days but the symptoms weren't like any cold I had ever had in the past. In fact, it was just coughing fits! Major coughing fits! This went on for about a week before I decided to seek medical help. Well....my cold turned out to be post nasal drip. If you've ever experienced it, it's brutal! I would have these violent coughing fits that would leave me gasping for air. During the night, I'd cough so much, and so heavy I would almost gag and throw up...desperate for air. I don't pretend to think that my bout with the post nasal drip is anything even remotely close to what someone with CF goes through, but I understand the fear of not being able to breath, and the pain caused by the retching.
Needless to say, many of the blogs I follow and read are of people with CF. Some have had lung transplants, while others are on the waiting list....some are managing OK, while others are struggling. What amazes me most is the very tight-knit community CF'ers have formed across the globe. These are regular people full of hopes and dreams that for the most part, blend in with the rest of us and try to lead as normal a life as they can. The funny thing is, I find those living with CF have a much deeper appreciation for each day they are given....regardless of how shitty they're feeling that day. I've listed a few links to some of the CF blogs I follow to the right of the page. I urge you to visit these blogs, read their hopes, dreams and struggles and maybe leave a comment or two, or an email cheering them on! Oh...and one final request, sign your donor card please!!